On The Road Again

This is the time of year when I do the most traveling to conferences and conventions.  This weekend I will be at the CHAP conference with Pennsylvania home educators.  This has always been a busy conference with the opportunity to see some familiar faces and meet new people.  This year I am accompanied by my husband, Scott, and two of our three children.   

Since my son, Josh, has been the inspiration and field tester for many of the ideas and strategies I’ve tried over the years I am always happy when he attends conferences with me so attendees can speak to him and gain access to a struggling student’s perspective.  My daughter, Beckie, has likewise tried out most of the products that Heads Up carries.  I have grown in my understanding and knowledge of learning challenges over the years and I am thrilled when I can help others as they try to make decisions to help their own children.  I have been around the block (on my knees in desperate prayer at times) as a Mom seeking help and answers.  Even so, I think it can be very encouraging for people to talk to Josh and Beckie about their personal challenges with Attention Deficit Hyperactivity Disorder, Auditory Processing Disorders, Sensory Processing Disorders, and homeschooling with a Mom whose learning style is very different from theirs. 

Josh and Beckie are the true experts, because they live with the challenges and understand the struggles and feelings students may face.  They can share firsthand what did and did not help them, and in many cases what they were thinking when they engaged in some quirky behavior or other.  You could ask me for my thoughts on why your child engages in a certain behavior, and I could give you my theories based on years of personal experience and similar situations I’ve encountered as a speech/language pathologist working with children.  You could learn as much or more if you ask Josh the same question and see immediate insight because he remembers what it felt like to be that kid who can’t sit still or pay attention or remember what comes so easily for others.   

You can ask me how I helped my daughter Beckie meet her need for sensory input and I could tell you strategies I used such as suspending a swing in the doorway for her.  Beckie, though, can tell you what swinging does for her and why she seeks it out along with other ways she meets her need for sensory input from a first person perspective.  Scott and I hope and pray to help people we meet in our travels, and Josh and Beckie willingly share their lives to help others who are struggling learners.  If you are attending the CHAP convention this weekend, please take advantage of this opportunity to talk to any of us.

Now, lest you think we have our collective act all together and will be telling you why we are so amazingly successful, let me see if I can readjust your expectations so you will be neither surprised nor disappointed.  We have been traveling to conferences for the past 15 years or so and have NEVER made it to a single destination and back without at least one of us either forgetting or losing something.  Our pre-conference hours are spent like a clutch of chickens running around with their heads cut off.  Seriously, you’d think we’d never prepared for a conference before.  

 Just this morning I asked Beckie if she was packed for our trip, since I had prompted her last night to pack as much as she could in advance. She smiled sweetly and said “Yep!  I’m pretty much all packed except for my clothes.”  

Then she gestured toward the washing machine to let me know where her clothes currently resided, and happily turned and walked away.  Now picture me standing in the middle of my kitchen with my mouth hanging open trying to process how one could be “pretty much packed” without including clothes.  

 There!  Now I think you are ready to meet the real Boring family, unplugged!

-Melinda (AKA Heads Up Mom) 

The Real Social Security

It’s hard to avoid, especially when you are a child. You read about it, hear others talk about theirs, and are prompted to write, talk and answer questions about it. What is the subject of this insidious obsession? A best friend. Doesn’t everyone have one?

Don’t get me wrong, I think best friends are wonderful. What I have difficulty with is the emphasis expressed to children about the need for one. The question, “Who is your best friend?” assumes that the child has one very special friend. Writing about what you like to do with your best friend is easy - if you actually have one. If you don’t, then the perception can be that something is lacking and you should try to obtain a best friend as soon as possible.

There are many wonderful children’s books describing the shared adventures of best friends. As a child I had the impression that everyone was supposed to have a best friend and if you didn’t, something was wrong with you. I felt the pressure to latch on to somebody so that I could have a ready answer when asked who my best friend was. Having a “best friend” was my goal, and I wasn’t particularly discerning in my selections.

In kindergarten, my best friend was Mike because he and I shared the same birthday and he gave me some pennies one time. In first grade, my best friend was Darryl, a blonde-haired, blue-eyed boy who held my hand under the table during music class and showed me how his eyes crossed when he took his glasses off. I thought that was so cool! After first grade Darryl’s family moved away so I had to find a new best friend and some other lucky person got to see Darryl’s crossed eyes.

There was an unspoken pressure to find a best friend replacement whenever the previous relationship cooled for any reason. By late elementary school, everyone understood that if you had a best friend you would have a seat saved for you even if you and your best buddy weren’t next to each other in line. There would be a spot reserved for you as your best friend placed a hand on the chair beside her and informed any would-be interlopers that the seat was saved. Before the teacher finished saying “Find a partner” for an activity, you and your best friend already knew you would pair up together. No one else even bothered asking you to be a partner since everyone understood that you would be with your best friend. You and your number one pal never had to wonder who you would eat lunch with or talk to at recess. Having a best friend was a relational social security that offered the assurance you would always have someone around.

For a child who struggles socially, making any friends let alone a best friend can be difficult. It’s complicated, because most of us have no idea how to teach our kids social skills that come naturally for most people. When you see your child try unsuccessfully to join a group or make a new friend, it is heartbreaking. How much should you try and intervene? You can’t make friends for your child, but sometimes your child doesn’t seem to be able to make a new friend by herself. Unless you’ve held a lonely child in your arms, knowing how badly he wants to have a friend but isn’t experiencing successful relationships it is hard to understand just how devastating it can be for that child and his parent.

I’m afraid that some of that need for social security through having a best friend can follow us into adulthood. For example, my daughter got to know a girl in our homeschool support group and the two of them really hit it off. They had a lot in common and enjoyed being with each other. The new friend’s mother had been college roommates with another homeschool mom in the group, and those two mothers had already decided that their daughters would be best friends. My daughter watched as the other two girls were shuttled to each other’s houses for play dates and signed up for classes together at the local parks and recreation programs without a backward glance.

These moms were not being deliberately unkind or exclusive. They were trying to give their daughters the kind of social security they had valued when they were growing up. There were quite a few moms in my homeschool support group who would not sign their children up for sports or other group activities unless their child’s best friend would be in the same group. The child with a best friend does not have to make an effort to include another child, because socially they are set. The child without a buddy in the group is more motivated to find another child who is at loose ends socially.

I tried to teach my children to look around and notice who might need a friend, and make an effort to include them. I was no doubt more sensitive to this than most, because I was a mother of one of the socially isolated children. Can you imagine the depth of sadness a parent feels when they are the only friend their child has? Truly, a good friend is an incredible blessing.

I get to know quite a few moms during my speaking engagements and my speech therapy practice. I’ve met some incredible women who agonize over their children’s lack of good relationships. Some children act in atypical ways because of their challenges such as autism or attention deficit disorder. Their moms work hard to teach them social skills, but their children continue to struggle and after awhile they are no longer invited to group social events because they are “different” and their behaviors make others uncomfortable. Now, in addition to isolated children there are increasingly isolated mothers.

As much as I’d like to believe it is the rare exception when an adult loses friendships because of her child, I know from personal experience that it happens frequently. Moms of special needs children need extra support, but often end up with less support because of their child’s differences that set him apart in a negative way. It’s a cycle that deserves to be interrupted.

This whole “best friend” situation can perpetuate the exclusion of those without one particular best friend. Maybe we could teach our children that even if they have a best friend they can still be friends with others and include them. Adults, even if your social needs are adequately met, I can guarantee you that there is someone in your life who longs to experience even a little of the camaraderie you share with your best friends. You and your child may not feel the need to add another friend to your life, but please look around anyway because someone undoubtedly needs your friendship. Can you share your social security with someone in need? If so, you just might change their lives – and teach your child how to love like Christ does along the way.

Nature Books and The Leaf Blower Noise

At this time of year in Ohio we are seeing the leaves change color and fall to the ground. Our outdoor walks provide us with crunchy leaf textures to trample and there is a different "fall" smell in the air around us. A leisurely stroll down the block will show us fallen acorns, black walnuts, and other tree products eagerly gathered by squirrels as they dart to and fro on the ground and along tree branches. We have a squirrel living in the ornamental pear tree in our front yard, and I like to pick up loose acorns and other such treats when I take the dog for a walk and then place the nuts in the nooks and along branches for "our" squirrel to enjoy. When my children were younger we took lots of nature walks, and I gave each of them a bag for collecting pretty leaves from different trees. We used tree identification books to figure out the names of the trees we saw, and we preserved a leaf from each different tree in a nature notebook. After pressing the leaves in a book, we glued them to a page where we listed all the information about what kind of tree it came from, where we found it, and the date we collected it. It was fun to read the book throughout the year and review if the leaf was simple or compound, when we had collected it, and more. Over the years, our collection increased and it was a challenge to see if we could find a new specimen that wasn't yet represented in our nature book.
Those times spent in nature are some of my favorite homeschooling memories for this time of year. My son, Josh, gave me another fall memory that is equally imprinted in my mind. With his AD/HD, auditory processing, and sensory issues, Josh often said or did unexpected things. His impulsivity gave him a tendency to do whatever came into his head, with the result that I often found myself trying to figure out what was going on with Josh based on what I was seeing and hearing. Our special needs children do what comes naturally to them, and often don't realize that not everyone experiences things the way they do. In this instance, Josh starting making weird vocal sounds as he played. I went into my analysis mode as I observed him. Is he stimming? Has he developed a vocal tic? Is he trying to calm and organize? Alert himself? Keep others at bay? Provide sound effects for what he is playing with? Can he stop making the sound if I ask him to? The speech therapist in me tuned in to see if the sounds Josh was making could be considered vocal abuse and could physically harm his voice. As I observed Josh, he seemed content. He could stop on request, but returned to making the sounds a minute later. It was not vocally abusive and his pitch and volume were within acceptable ranges for his "normal" voice. In the back of my mind, I recognized something vaguely familiar about the sounds Josh was producing. Then it hit me and seemed so obvious that I almost laughed at not recognizing it sooner. Josh was reproducing the noise of a leaf blower! Once I realized it, I became aware that somewhere in the neighborhood a leaf blower was in use. It was faint and distant and I had not even registered it. But Josh had an uncanny ability to imitate noises and he heard things that most people don't notice. He did a pretty accurate leaf blower noise. He also made airplane and vacuum cleaner noises, but I recognized them right off the bat. The leaf blower noise took me awhile, but whenever I hear one in use I still smile and think of little Josh's noise imitation talent.

Adults with Down Syndrome

My friend Penny brought this to my attention. I don't know if I can get HBO, but I hope to find a way to watch this when it airs. Here is the trailer:

To Tell, or Not to Tell?

I've met many parents who are pretty sure their child has AD/HD or some other learning challenge but they are hesitant to make it official by having their child evaluated and diagnosed. The fear that a label may limit their child, be inaccurate, or be used in discriminatory ways is valid. When my son, Josh, was approaching school age I thought about the advantages of private schools with smaller class sizes. Several people suggested that I go ahead and enroll him without telling the school personnel about his AD/HD diagnosis so they couldn't turn him down. That was before we knew he also had an auditory processing disorder. I was assured that once he was enrolled in the school, they couldn't kick him out just because he had a diagnosis and they would be forced to work with him. Wow! For one thing, Josh was pretty easy to pick out of a group as being different than his peers. I'd give it 5 minutes tops before things became unavoidably noticeable. So basically I would have had to keep him out of sight until school had officially started. Then there was the whole idea of the people he would be spending hours with each day being tricked into having a student that they weren't prepared for and apparently didn't feel equipped to deal with in their classroom. That made me feel sorry for Josh and for the teachers, since having someone who was "forced" to work with my child because I had hidden some vital information from them just didn't sit well with me. I loved that boy, and the thought of sending him somewhere that he might not be wanted didn't make sense to me. I had the same dilemma when it came time for Sunday School at church. I didn't want to bias the teachers against Josh by telling them all his struggles, so I coached him on the way there and dropped him off like all the other parents with their children. The Sunday School teachers, bless them all, are volunteers in the church and most don't have training as educators - and for most kids that's just fine. But to do the "drop and run" with a special needs or challenging child is not a good idea, as I came to realize. Every week, the other parents would pick up their children and happily leave. When I came to pick up Josh, I inevitably got pulled to the side and told, "I need to talk to you about Josh." Then I heard, week after week, a full litany of complaints from frustrated and bewildered teachers who were describing things that were not unusual for Josh but were not typical for most children. For example, Josh was not adept at sitting still for long. He was not deliberately disruptive and was never disrespectful, but his need to stand at the table while coloring his page instead of sitting in a chair like everyone else was considered problematic. His sensory issues led him to sit at the back of the group on his carpet square, and everyone else was huddled together and bumping into each other which Josh was carefully trying to avoid. But that meant he wasn't "with" the group because he had made a row of one - just himself! And the list would go on and on until I was finally allowed to leave with my miserable son who knew that somehow just by being who he was he had screwed up again and people were unhappy with him. Those experiences led me to advocate more and be preemptive with anyone I left Josh with for any length of time. When there was a sub or a new Sunday School teacher, I made a point of telling them a bit about Josh and strategies that would help them, and I was careful not to dwell on the negatives. I shared Josh's strengths, too, for I found that if I became negative about my son others felt free to share every little thing they saw as being wrong or weird about him. I was well aware of Josh's struggles and it served no purpose other than to discourage me when others felt the need to complain about him. All this, and he wasn't even doing anything "bad" on purpose! When someone was going on and on about all the things Josh did or did not do, I learned to quietly point out something that he had done right, or I'd share something that Josh had enjoyed learning in their class previously. This seemed to derail some of the negativity some of the time. Just as with our kids, nothing works all of the time but something will work some of the time. We need strategies for working with those who are in a position to care for our children, and hope that something will work some of the time. Whether you are a natural advocate or a reluctant one, if you have a child with a learning difference or special challenges, you must be an advocate unless and until your child one day develops the skills to advocate for himself. In my experience, being deliberate in my advocacy was hard but preferable to what happened when I just waited and hoped things would work out for the best.

Making the Most of Your Time

“There is an appointed time for everything. And there is a time for every event under heaven.” Ecclesiastes 3:1 (NASB)

When you are homeschooling a special needs or struggling child, you are not always on the same timeline as others. The curriculum you use needs to be adapted and usually one of the biggest modifications involves time.

Our children with various challenges and differences do not develop at the same rate as those who are typically developing. They need more time to learn skills and retain information. They may mature more slowly and need additional practice and support to progress. My son could take two hours to do an assignment I thought should take twenty minutes, and it was the same way with chores. Other children have medical issues like seizures that can interfere with their ability to remember previously learned skills. They need to re-learn information, and that takes time and makes the rate of progress variable. So given those kinds of situations, how can we make the most of our time and be good stewards of that resource?

One lesson I learned about my use of time was that I really needed to focus on my goals for each of my children. Once the goals were in the forefront of my mind, it was easier to eliminate things that were not conducive to helping achieve those goals. When everything is treated as being equally important, there is no priority and the important issues may get pushed aside by lesser matters.

With my son, Josh, it became clear that he was not going to be able to do many different subjects in a single day and finish all of his work. Although he didn’t need as much sleep as I did in those early years, I didn’t want him spending all day and then the evening trying to get his schoolwork done, struggling all the while. I homeschool for many reasons, including helping my children develop a love for learning. Spending too many hours on school tasks seems like a good way to achieve burnout for all of us. My husband and I agreed to focus on the basics with Josh, and limit the amount of time spent on highly structured learning tasks.

I had to pare down my long list of what I would like to do and instead think realistically about what I could do each school day. Because Josh and his sister, Beckie, had learning challenges I had to eliminate some of the supplemental material I had originally planned on and limit the work to the core essentials of their education.

In addition to recognizing the best way to invest our time, we need to try to teach our children to make the most of their time. Many kids live in the moment, which is a perspective that has blessings of its own. Without losing that ability to fully experience life as it happens, we need to gently guide our children to consider future events and plan for them in a thoughtful manner. This does not come naturally for most children, and there may need to be consequences that occur as part of the learning process.

Here is an example from the Boring family homeschool: I have a lesson planned and go over it with the kids. They start goofing around, are not working on their assignment even though they know what is expected and are capable of completing the work. I do not mind spending more time on a lesson if my children do not understand something. However, when it is clearly a matter of choice and they are choosing to be silly, they are wasting their time and mine and there will be consequences. I think that the children should experience the consequence of their poor decisions so that hopefully they will make better choices next time.

With that goal in mind, we started “homeschool homework” when the children were wasting time. I would set a time limit for a certain assignment, and if they did not complete it within that period, they had homework with Dad when he got home. This kept them accountable to Dad, and kept them from more play time until their homework was done. This worked well for us since my husband did not have to plan or teach the lesson but could just follow-through with what I had assigned.

Making the most of our time will be manifested differently for each of our families. We all have limitations and demands on our time. Finding balance, remembering our goals, and investing time in our children will allow us to experience the satisfaction of time well spent.